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Transition Services for Adolescents with Lysosomal Storage Disorders

Christian J Hendriksz

Transition can be described in short as change. People go through many transitions in life, but those that occur around the teenage years may be the most significant as they are also associated with physical change. Winston Churchill said that “there is nothing wrong with change, if it is in the right direction.” This is never truer than when patients with rare diseases move from pediatric services to adult services. The process of transition should be individual, and the outline provided in this commentary is just one of many models proposed for patients with rare inherited metabolic disorders. The official definition of transition in this case is “the purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adult-oriented healthcare systems” [1].

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